Nystagmus Network

We provide support and information, raise awareness and fund research.
Nystagmus Network
REGISTERED NAME
NYSTAGMUS NETWORK
REGISTERED NUMBER
1180450
ORGANISATION TYPE
Charity Commission England and Wales
YEAR OF REGISTRATION
2018
LOCATION
United Kingdom
Last Updated:
20.01.2022
key-image
£95k

Turnover

0

Employees

5

Volunteers

Organisation Overview

Areas of Interest

  • Disorders

Our History

  • The Nystagmus Network was founded in 1984 as a parent support group by Vivien Jones after her son was diagnosed with nystagmus when he was 3 months old. It has grown exponentially from these humble beginnings to the hi-tech digital online presence of today. Vivien remains at the helm as Honorary President and chair of the research committee.

Areas of Operation

  • United Kingdom

Beneficiaries

  • People with Disabilities

    Support and information for adults and children living with congenital or acquired nystagmus, their families and carers and the professionals working with them. Nystagmus is a serious form of

Our Vision for a better future

  • The Nystagmus Network promotes a better understanding of nystagmus and funds research to find effective treatments and, eventually, prevention and cure. Until that day, the charity offers the nystagmus community as much support and information as possible and ensures that, following diagnosis, there is somewhere for them to turn.

Our goals to make a difference

  • Support the 1 in 1,000 people at least living with congenital or acquired nystagmus.

  • Train eye care professionals to meet the needs of patients with nystagmus in High Street opticians.

  • Deliver an annual nystagmus research conference to ensure collaboration and progress towards cure.

  • Build regional nystagmus networks to bring targeted and timely support to adults and families.

  • Connect with teachers to ensure that children with nystagmus are supported in school.

Contact Details

Social

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